this post was submitted on 14 Aug 2023
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I'm just curious about this. As someone with a chronic illness, I pretty much never hear anyone talk about things related to the sorts of difficulties and discrimination I and others might face within society. I'm not aware of companies or governments doing anything special to bring awareness on the same scale of say, pride month for instance. In fact certain aspects of accessibility were only normalized during the pandemic when healthy people needed them and now they're being gradually rescinded now that they don't. It's annoying for those who've come to prefer those accommodations. It's cruel for those who rely on them.

And just to be clear, I'm not suggesting this is an either or sort of thing. I'm just wondering why it's not a that and this sort of thing. It's possible I'm not considering the whole picture here, and I don't mean for this to be controversial.

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[–] misnina@crystals.rest 4 points 1 year ago

For those asking for something that needs help/awareness, chronic pain sufferers (and disabled, but speaking from chronic pain myself) pretty much always have diminished mental clarity due to being in pain or stressed all the time. We can be seen as lazy when we don't have a job or have a hard time contributing, but I think people don't realize that getting medical shit done in america is like a full time job. The amount of hoops you need to jump through, repeat appointments to get your doctor to actually listen to your concerns, dealing with administration of doctors, insurance, and government because THEY STILL COMMUNICATE THROUGH FAXES, and just being dead tired of being a broken human being. You have to shout and scream basically or you will be pushed to the wayside.

So basically, please be aware of invisible illnesses and have patience. We may have the physical capability to do a task on a good day, but shit can get so beaten down. Also medically insurance covered, like, managers/secretaries that help you navigate this bullshit would be great. A real job as a medical advocate for a person should exist.

There could also be more awareness spread against the stigma/stereotype of people coasting off disability. (Often it's snuffed when it's mental) It's not really enough to live on, it can be taken away extremely easily, you have to resign yourself to poverty because if you can make some money you aren't truly disabled. That and disability submission takes 6 months to process, in which most people are denied first just cause. so they then have to get a lawyer to appeal, which takes months+. It's hard to get disability, and it gives you scraps.

[–] Kahlenar@lemmy.world 3 points 1 year ago

To add, as most responses here seem correct but I haven't seen this said.

In recent mentors memory there has not been a moral judgement attached to disabilities. There's a lack of societal hate to overcome, everyone agrees disabilities suck and aren't your fault. So there's no rallies, no allies.

[–] Sterile_Technique@lemmy.world 2 points 1 year ago

Your place of work should be willing and likely already has a policy in place to accommodate disabilities. Talk to them about your needs.

If that gets you nowhere, seek a less shitty employer. I'd start by trying to find other people with the same/similar disability and asking about the companies they work for. Once you find a good one that's compatible with your area of expertise, keep an eye on their postings.

What you DON'T want to do is just suffer in silence - no company is going to lift a finger for you unless you specifically ask it to.

[–] gelberhut@lemdro.id 2 points 1 year ago (1 children)

Well, as far as I understand "pride" came as a result of years when people have to hide their orientation since in some contries it was a crime and so on. And "now" they do not have to. Actually, these days, I see pride as outdated and overused - either your orientation your private business or it is a public show you put on your visit card (in this case why others should consider it as as a "private").

Not sure to what degree this is relevant for disabled people. Outside or the pride, I see many things are done to include disabled people in sociaty: -Trains and buses have support for disabled people and special places. And a lot of info labels here and there

  • same with mostly all public institutions
  • many shops are equipped to be reachable
  • I have never seen people were rud with disabled people, and usually are ready to support
  • there is special oplimpic games
  • in schools there are activities to show children how the life of disabled people looks like in person
  • etc...

ould you show example of discrimination you are talking about - no prime month is not a discrimination (many groups of people do not have it)?

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[–] Rentlar@lemmy.ca 2 points 1 year ago (1 children)

Excuse my ignorance because my only (known) disability is needing corrective lenses.

LGBTQ rights and issues are relatively straightforward (where the goal is to love whoever you love and act like the person you want to be). Disability (to me) is much more of a vague and broad concept so I don't know what the aim of a movement would be.

The causes of disability range from a voluntary or involuntary event, whether it's a workplace incident, sports, car crash, or sometimes people have it from birth. People inflicted with conditions such as blindness, deafness, speech impediment, schizophrenia, or being bound to a mobility or other device like a wheelchair, pacemaker, hearing aid. There's such variety and people need assistance in different ways.

I try to help where I can, but I have trouble offering help sometimes. How do I support someone without calling attention to their disability?

[–] OsrsNeedsF2P@lemmy.ml 1 points 1 year ago (6 children)

There's a lot of LGBT people with the same demand - "Let us be this gender". What demand are chronic illness people making?

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[–] LethalSmack@lemmy.world -3 points 1 year ago* (last edited 1 year ago) (1 children)

Part of the reason is what the consequences are.

Being perceived as gay in public? You get beat. Want to marry your partner? Too bad. Want to be able to advocate for your partner when they’re in the hospital? You’re now trespassing cause your not family. Happen to be watching nieces/nephews? Congrats , you’re now a pedo. The list of atrocities goes on.

This has gotten better over the years due to the protests and pride events

Chronic illnesses are generally met with sympathy. I’ve yet to hear of anyone being beat for their illness except for certain cases of tuberculosis and aids.

Not to say this group should be ignored. It just gets lost relative to everything else. Everyone deserves healthcare and it ends up being drowned out by that I think.

[–] QuantumCloud@kbin.social 4 points 1 year ago* (last edited 1 year ago)

No one will mention it as a reason for violence, but it happens all the time. When people perceive you as different, you will get treated differently. You'll likely experience violence, perhaps in more "subtle" ways, such as getting bullied. It's not seen as discrimination, since people will see you as an outsider and not as a person who behaves differently due to a chronic disease

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