this post was submitted on 14 Aug 2023
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I'm just curious about this. As someone with a chronic illness, I pretty much never hear anyone talk about things related to the sorts of difficulties and discrimination I and others might face within society. I'm not aware of companies or governments doing anything special to bring awareness on the same scale of say, pride month for instance. In fact certain aspects of accessibility were only normalized during the pandemic when healthy people needed them and now they're being gradually rescinded now that they don't. It's annoying for those who've come to prefer those accommodations. It's cruel for those who rely on them.

And just to be clear, I'm not suggesting this is an either or sort of thing. I'm just wondering why it's not a that and this sort of thing. It's possible I'm not considering the whole picture here, and I don't mean for this to be controversial.

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[–] OsrsNeedsF2P@lemmy.ml 1 points 1 year ago (2 children)

There's a lot of LGBT people with the same demand - "Let us be this gender". What demand are chronic illness people making?

[–] MossBear@lemmy.world 7 points 1 year ago

Let us use the abilities we have without demanding that we do what we can't. Let us have as much access to society as if possible. Don't shut us out and ignore our existence.

[–] can@sh.itjust.works 6 points 1 year ago (1 children)

Accommodate and recognize their existence?

[–] stevehobbes@lemmy.world -2 points 1 year ago (1 children)

But who’s? And with what accommodations?

[–] Drusas@kbin.social 5 points 1 year ago (1 children)

I'm very curious what the impetus for these questions was. It sounds rather hostile to people with disabilities.

[–] stevehobbes@lemmy.world 3 points 1 year ago* (last edited 1 year ago) (1 children)

The person I replied to answered a tactical question, which was rephrased “ok, it’s not enough, what do we need to do and why, and for who?” Ie “I am a man who lives with and loves a man who can’t get health insurance because the state doesn’t recognize our relationship.”

With something that basically said “see us, acknowledge our needs” without specifying who “us” are and what those needs are.

You can’t galvanize people to action when you can describe the problem or a solution, or how many people are impacted.

This whole thread is vagueposting about issues with no actual asks that anyone can help with.

You replied to one of my other comments that was the impetus for this. People saying nothing is being done - when clearly a lot is being done - without describing who it isn’t being done for, and what’s not being done.

I’m not suggesting we shouldn’t do more, I’m sure we should. But I do think we have to say more and be real about what is and isn’t working and what we need to do.

[–] can@sh.itjust.works 2 points 1 year ago

I was guessing and hoped someone with more experience would chime in.