this post was submitted on 07 Sep 2024
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Edit: thank you all very much for your time, thoughts and effort to reply to this. I really appreciate it and I try to find a new doctor. Your questions and encouragement were very helpful and made me realise that my symptoms are too strong, considering my lifestyle. For those who asked questions, here are the answers: I eat healthy, we cook fresh, colourful food almost every day, only drink water, coffee, tea, no alcohol, no smoking, no fast food. I walk my dog several times a day and when I'm doing something where I have to sit for an extended period of time, I take a little walk evey hour or so and also use a standing desk attachment to change my position. I sleep on a really good mattress (my partner struggled with our last one so we invested in a good pair of matresses, matching our body type) I have a healthy weight on the lower end of the scale. I had to cut back my exercise that I was doing for twelve years due to the pain, switched to light Yoga and streching until even that became unbearable.
Thinking about all this together, I think my fear of not being taken serious made me believing my current GP.

I'm in my mid twenties. My body seems struggling, since May/ June, so some time then I went to my GP. His response: "everyone experiences symptoms of their ageing body at a different time, seems like you just experience it earlier..." This was around May/ June, it just tends to get worse. Which leads to the questions featured in the title. My body hurts, like, a lot. Especially my low back/ sacrum. My knees, shoulders, wrists, ankels. My hands are swollen in the morning and they hurt, I can't unscrew any lids or bottle caps, sometimes can't even write anymore as my fingers are very stiff. As the rest of my body. I can't reach for anything on the ground in the morning, it makes everything so difficult. I can't really bend over to tie my shoes or pick something up. I can't do my regular activities even though I really want to do my sports like climbing which I really like. I do like being active and want to stay fit. But it just hurts too much. At the same time, resting somehow makes it even worse. I'm exhausted, but need to constantly move around on a low level. How is everyone else doing this if this is what ageing feels like? How am I supposed to have kids or even just live like this, as I always just hear that with an ageing body, everything just gets harder every year? I really do appreciate everyone who reads this. Thank you in advance for answering if you have any tips on how you manage this

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[–] upsiforgot@programming.dev 13 points 1 month ago (2 children)

Thank you for your answer, I appreciate everyone wo is taking the time and effort. Well, my brother has spondylitis ankylosans. I asked my doc about it (my mother always warned us to have in our mind when something comes up) but he said that this is not related and my symptoms wouldn't match as I am too young. He also stated that it especially has nothing to do with low back pain. Other than that, no chemicals, no radiation (we live in a area where this actually can be a problem so it is quite common to check for it and we never had any elevated levels) I'm not working in a high stress environment, no heavy lifting or something like that and I move quit regularly during the day

[–] SacralPlexus@lemmy.world 22 points 1 month ago (1 children)

It’s really interesting to me that you have provided this additional clue because ankylosing spondylitis was literally the first thing that popped into my head reading your story. I agree with others that your story sounds much more than typical aging symptoms and you should seek the opinion of another physician.

[–] upsiforgot@programming.dev 9 points 1 month ago (1 children)

Yeah well my GP just shoved this aside and I didn't do any reasearch about it, because I try to avoid reading about symptoms etc. in order not to get 'biased', like interpeting too much or influencing my diagnosis (does this make sense?) but as you were asking about it it came back to my mind. Maybe I should check in with a specialist as I just now tried to find some information and it seems to fit really good, it even matches some minor other problems I had earlier (and my GP himself diagnosed me with)

[–] SacralPlexus@lemmy.world 9 points 1 month ago (1 children)

Even if it ends up NOT being ankylosing spondylitis exactly - you should know that there are some hereditary factors that predispose to AS but also to other, similar conditions which are collectively called “inflammatory spondyloarthropathies.” Given your brother’s diagnosis you probably have a higher chance of one of these conditions because of your shared genetics. So yeah absolutely ask another physician until someone investigates your symptoms!

[–] upsiforgot@programming.dev 8 points 1 month ago

Thank you for this insight. I really don't want to be sick but if there is something, especially something that could be treated, I'd like to know. My GPs response somehow made me feel like I was overreacting but with so many people reacting so differently, I'll try to take myself serious and get that checked out!

[–] ulkesh@beehaw.org 4 points 1 month ago* (last edited 1 month ago) (1 children)

Up front: I am not a doctor.

Seriously, seek a second opinion, and if you are a woman, and it sounds like the original doctor is a man, find a woman doctor. I know this sounds sexist, and I’m honestly not trying to be, but it has been shown many times how male doctors tend to overlook or not listen to female patients. You must advocate for yourself.

Anecdotally, my spouse has had this happen numerous times. And it is extremely frustrating every time because it’s effectively a waste of time and money. And, something could be seriously wrong (not saying anything actually is), so you should make very certain at minimum that certain testing is done such as various tests from blood work and/or urine testing.

[–] upsiforgot@programming.dev 2 points 1 month ago

Thank you for your encouragement. I didn't consider gender playing any role in this yet even though I know about gender bias in medicine in general. Definitely something one should consider when finding a new practitioner