Privacy

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A place to discuss privacy and freedom in the digital world.

Privacy has become a very important issue in modern society, with companies and governments constantly abusing their power, more and more people are waking up to the importance of digital privacy.

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Do No Harm: Don't give Big Tech access to our medical records (act.wemove.eu)

submitted 1 year ago by JRepin@lemmy.ml to c/privacy@lemmy.ml

3 comments fedilink hide all child comments

cross-posted from: https://lemmy.ml/post/1181011

We want the right to privacy over our medical records. This means having control over our personal health information, who has access to this information and for what purpose.

We demand you to amend the European Health Data Space by:

Requiring explicit consent from patients regarding sharing of medical records for purposes not directly related to treatment(aka for secondary use)

Limiting the extensive categories of ‘health data’

Narrowing the scope of how this information can be used, and who can access it

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[–] ollie@reddthat.com 1 points 1 year ago* (last edited 1 year ago)

The problem is... Big Tech already has complete access to our medical records. In the US at least.

MyChart is a privacy nightmare. As are most EHR systems.

And doctors don't understand security even if their lives depended on it.

They can barely get the records correct!

Avoiding giving data to any medical professional for recording into electronic databases is a no-no.