this post was submitted on 10 Apr 2024
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Appendix 4 in the Cass Review revealed that 6 out of the 7 adult GDC clinics currently operating in the UK refused to collect or share their patient followup data. If you want better care for struggling LGBT kids, you need the data.

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[–] RobotToaster@mander.xyz 8 points 5 months ago (2 children)

That looks really, bad, doctors of all people should know that evidence is everything in medicine.

[–] stsquad@lemmy.ml 10 points 5 months ago

The lack of follow up and record keeping at Tavistock was shocking. I'm all for expanding the range of providers to tackle waiting lists but they have to bring a more professional approach to providing care and a more holistic view if the patients.

[–] CatTrickery@lemmy.blahaj.zone 7 points 5 months ago (1 children)

Its important to note that the evidence is there, they just applied an impossible and unethical standard to it to dismiss all but one study. Of those identified to be involved in this report, multiple conversion therapist organisations were consulted but no trans advocacy organizations.

The way in which they dismissed the evidence was notably the exclusion of double blind studies. Imagine if they said the same of cancer treatments.

[–] RobotToaster@mander.xyz 3 points 5 months ago (1 children)

I'd have to look at their exact rationale to know for sure why they excluded those studies.

Unfortunately disproportionately high standards for evidence isn't a new thing in the UK medical establishment though, NICE's recent rejection of ketamine for depression was pretty shaky IMO.

[–] CatTrickery@lemmy.blahaj.zone 0 points 5 months ago (1 children)

In this case, they used an adaptation of Newcastle Ottowa scale, however they didn't provide an appendix of what those adaptations actually were. The specific points were raised that the studies weren't double blind, which would obviously be a violation of basic ethics in this case. There were multiple conversion therapists involved in the report so its pretty reasonable to assume malicious intent.

[–] RobotToaster@mander.xyz 2 points 5 months ago* (last edited 5 months ago)

Ah, okay, I misunderstood what you meant by "The way in which they dismissed the evidence was notably the exclusion of double blind studies." I thought you meant they had excluded studies for being double blind, which would obviously be quite weird.

It's frustratingly common in mental health (which gender dysphoria is still officially considered) for regulators to demand double blind studies, no matter how strong the evidence from observational studies is.

[–] kralk@lemm.ee 4 points 5 months ago (1 children)

They HAVE the data, they just refused to share it with this ridiculous show trial of a "study"

[–] sunbeam60@lemmy.one 3 points 5 months ago (1 children)

Why is it a show trial of a study? In the article it seems Mermaids is supportive of the study.

[–] CatTrickery@lemmy.blahaj.zone 3 points 5 months ago

Mermaids are widely distrusted among the trans community as an org targeting trans youth with cis adults in charge. The wider community are mostly opposed to gender clinics however this pushes them in a more hostile direction, specifically because they chose to opaquely work with conversion therapist networks and no trans advocacy organizations.

[–] autotldr@lemmings.world 2 points 5 months ago

This is the best summary I could come up with:


Adult transgender clinics in England are facing a Cass-style inquiry into how they treat patients after whistleblowers raised concerns about the care they provide.

NHS England has announced that it is setting up a review of how the seven specialist services operate and deliver care after past and present staff shared misgivings privately during a previous investigation.

As a first step, NHS England will send “external quality improvement experts” into each of the clinics to gather evidence about how they care for patients, to help guide the inquiry’s direction.

It was prompted by a lack of reliable evidence on key issues involved in the care of children and young people who are questioning their gender identity, such as the safety and efficacy of puberty blockers and cross-sex – masculinising or feminising – hormones.

The University of York received “significant opposition from all but one of the adult GDCs including refusal to facilitate the initial opt out stage of the study”, she said.

Kate Barker, the chief executive of the LGB Alliance, said it was “deeply troubling that attempts to gather evidence for the Cass review have been deliberately blocked”.


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