this post was submitted on 09 Jan 2024
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politics

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The settlement is the FTC’s first ban on selling sensitive location data.

The Biden administration stopped a company from selling data on people’s medical visits on Tuesday, its first settlement on a privacy issue that has many Americans concerned about who can see their most sensitive personal data — particularly visits to abortion providers.

After an investigation, the Federal Trade Commission said it had reached a settlement with Outlogic, a location data broker formerly known as X-Mode Social, which had been collecting information on people’s visits to medical centers.

The settlement is the first major enforcement on location data since a 2022 executive order directed the government to ramp up privacy protections for anyone seeking an abortion.

The FTC has been cracking down on health privacy violations after the U.S. Supreme Court ruled there is no constitutional right to an abortion when it overturned Roe v. Wade in 2022. A Biden executive order in July 2022 directed federal agencies to protect people’s privacy related to reproductive health care services.

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The Markup found that the data broker was receiving location data from the family-tracking app Life360 as well as dating apps for the LGBTQ community.

Real shame that they'll publicly shame Life360, but not the dating apps selling our their customers. I'm going to assume it's grindr since it's the biggest name that I'm aware of, and surprisingly isn't owned by match group who I was going to throw under the bus.

[–] WeeSheep@lemmy.world 11 points 1 year ago (5 children)

Wasn't that already illegal due to HIPAA?

[–] SinningStromgald@lemmy.world 20 points 1 year ago

I don't think location data from your cellphone is protected by HIPPA.

[–] sramder@lemmy.world 6 points 1 year ago

You would really think so right? At this point I’m curious WTF it’s good for.

[–] Licksrocks@lemmy.world 4 points 1 year ago

This is not the function of HIPAA exactly. HIPAA is primarily used as a way to regulate the sharing of health information, and provides very specific requirements for the sharing of health information, with many caveats.

HIPAA specifically targets healthcare providers (covered entities) and the third-parties (Business Associates) which they work with. More specifically, it provides requirements for the sharing and storage of data from a covered entity to a business associate, and establishes liability in the event of a data compromise for either party.

If the data did not originate from a healthcare provider, likely HIPAA does not apply.

In this instance, the applications identified as sharing the data are not covered entities or even business associates.

[–] KairuByte@lemmy.dbzer0.com -1 points 1 year ago (1 children)

I really don’t understand why so many people think so many things fall under HIPAA. Just because it is tangentially related to medical information (in this case the fact that your location showed you were close to a medical center), does not mean it falls under HIPAA.

[–] FarFarAway@startrek.website 2 points 1 year ago (1 children)

During covid, my company was deemed essential. (Non-healthcare) They would send a email alerting people to the fact that someone had had covid in the building, but refused to name that individual due to it "being a HIPAA violation."

It was so frustrating. I'm like, that's not how that works.

[–] KairuByte@lemmy.dbzer0.com 3 points 1 year ago (1 children)

Mmmmm that’s actually a little different, depending on where the information was coming from. If you were a third party working to inform people, based on information provided by a healthcare organization, the info could still be covered by HIPAA. It comes down to the originating source of the information, not the company or individual handling it at that point in time.

[–] FarFarAway@startrek.website 1 points 1 year ago

Nothing so formal. More like just the boss of a construction company not telling people if the person at the desk they were loitering at the day before called in sick cause they tested postive for covid. They didn't want people being conscientious about not infecting anyone else because the ~~spice~~ cash must flow.

[–] thesporkeffect@lemmy.world 1 points 1 year ago

Lina Khan is a rare human being

[–] Ensign_Crab@lemmy.world -1 points 1 year ago

Remember the CAN-SPAM act and how it ended spam forever? Remember how the national Do Not Call registry stopped telemarketing calls once and for all?

Yeah, this is going to do nothing at all.